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Old 10-01-2009, 02:22 AM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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dmplaura dmplaura is offline
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dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default When does RRMS become SPMS?

I've been wondering about this one for a while now.

I'm RRMS, and I can tell you for sure when I'm in a relapse, and I'm usually pretty sure I'm still in remission (and I haven't had a relapse in a while).

With that said, when does RRMS become 'reclassified' as SPMS? Is it based on the 'disability' scale? Is it the lasting symptoms? When does one cease remission/relapse periods, or is there a fine gray line between these 2 classifications.

Example: I'm RRMS. I have a bunch of symptoms before dx, I have IV Solumedrol and enter remission. I have another relapse later on, and following another course of IVSM, I have symptoms from the past that don't completely go away, or return but aren't 'new' so I don't alert my neurologist to them, as I'm not having a 'relapse' so to speak, or am I?

Why's this freaking disease have to be so utterly confusing anyways?!

Anyways, the question is: what differentiates RRMS v SPMS, or when does the neuro step up and hand out the SPMS reading? Can SPMS still have partial relapses, or does SPMS mean that your symptoms of your relapse all remain? See where I'm all confused? . I bet you do!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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