I am also newly diagnosed as well with a 12 mm chiari. Mine was missed by the radiologist but caught by the neurologist who just said "oh it's looks like you have a chiari but it doesn't look it's bothering anything". I then went back to our radiologist and asked for a measurement. That is how I know how big it is. Since the measurement, I have only seen my rheumatologist and fam dr. No one really seems interested...

I too would consider my symptoms as mild and confusing at best. I have the headaches with straining, laughing or crying. The rest of what goes on was suspected to be autoimmune of some type but undiagnosed. They are treating me for fibro and hypothyroidism. I think they are making a stab in the dark. I had extreme fatigue and bilat pain in my fingers and feet. At this point I am on so many meds that I don't know what's real and what's caused by the meds. I am starting to choke more but my mouth is dry from meds...I am starting to loose by balance more, but maybe I might have a sinus infection...I have edema in my legs but that could be from meds... I had the "dropsies" for a while but it got better... I lost movement of the first three digits of my left hand for about a month, but it resolved itself... See what I mean?

I am unsure where to go next. Are there any chiari drs around west Virginia? I live where west Virginia borders Ohio and Kentucky...any thoughts on symptoms or specialists would be great.