Hi Marleen,
The PM doc that Im seeing now is hung up on me having the SCS & refuses to listen to reason. I had a tkr because it was "supposed to help my pain". I went into that surgery blindly listening to the doctor because he "knew what was best for me". I started doing research on the SCS & the more I read, the more I was not liking what I was reading. From what Ive been able to find & in talking not only with people here but from the nurses that I have coming to my house to help me & monitor my other health problems--they dont have anything good to say about the SCS. When I have gone to the PM doc & have all my information out---he brushes me off & never lets me show him what I have. I had to talk to their "shrink" awhile back when they were first talking about this & I showed him my information--since then---no one at that office has seen it, so I dont know if he told them that I had a bundle of stuff to show them or not. That might be the reason why the doc is so short with his time, now I dont even see him but I see his associates. Im still researching it & still am not liking what I am finding. The opana that he has me on works great but the perocet that he has me on---Ive been on since 07 & it just doesnt work anymore---he wont strengthen the dose & if I ask that means putting me on the schedule for the surgery for the SCS so I dont even ask anymore, but I am looking for another pain clinic that will take my insurance. I even have my nurse case manager with my insurance helping me try to find one. I really hope that another one can be found---one that is sympathetic to the pain that we who have this disease know that this pain is not fake & that surgery isnt always the answer to everything. Im on Neurotin--300 mgx 3 daily, opana---20 mg x 2 daily & perocet---7.5/500 x 2 a day & thats for the pain. Im on 12 other meds a day for my other health problems. Ive never been one for being on medication but I dont want surgery--atleast not the SCS surgery. Thanks for replying, I appreciate it. I want all the advice that I can possibly get.
Janet