Quote:
Originally Posted by Jimking
After several years of dealing with RSD, my wife still has to tell the doctor that she does not want to do certain things and take certain meds. It disturbs me as her husband, who does not have RSD, that this happens because I'm afraid the doctor may dismiss her as a patient. My wife refuses to take certain meds that she says do not work because she is in a latter stage of the disease and that they will not work, cause her to gain lots of weight, makes her head feel funny. She has every right to reject them, I believe. She's been told to go to physical therapy where they've actually made her feel worse by putting her on excercise equipment. She's tried many of these things with no success and has no desire to beat a dead horse over again. What I don't quite understand is when her doctor refers to a third party their desire for her to do these things. I'm not sure who she is referring to but I get the feeling it's the insurance company whom I hate with a passion.
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Hi JimKing,
I know exactly how you feel & so does my hubby---we have been "jumping" through the hoops of the medical field now for 7 years. I was told years ago to see a "shrink" because the pain was all in my head. It didnt matter that I couldnt walk or anything like that---I just needed to see a shirnk & that would make me "all better". Sometimes I wonder how some of these doctors these day actually get a license to practice medicine. I find more information about my medical problems on the internet than they obviously know sometimes---it amazes me. Just know that there are obvious "quacks" everywhere---they just arent in one state.
If you go to rsdhope.org they have alot of information there---too much to read in one night----I have found alot of helpful information there. Just wanted to pass along that site---you might want to check it out. Im sorry that your wife has been through the ringer----I hate to hear that someone else has had to go through what we've had to go through---especially when there is no need for it.
Ive said more than once that the doctors need to experience what they are treating their patients for, then they might be more caring & atleast have an idea of what we go through. Im sure that it would make the whole doctor experience a whole new ball game if they had too.
They might not be so quick to judge us, if you know what I mean.
Janet