Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Kendra,
I can't believe that they haven't given you the meds yet with a positive antibody test. I have a horrible suspicion if your EMG comes back normal you may have a fight on your hands to get medication. Unfortunately a lot of neuros will diregard the antibodies if you have a negative EMG. I know its nuts but it I hear it a lot on another forum I'm on. Some neuros will only take the EMG results as they class this as the gold standard, and can not cope when this test comes back negative.
I really hope that this is not the case for you and that the give you the medication you need. Its just crazy that you have been left high and dry.
Im so sorry the test was painful and left you swollen. My forehead swelled really bad and I bruised where the different needles had gone in. Its no fun.
Fingers crossed you get some positive news soon.
Love
Rach
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