Rach,
I hope the EMG doesn't mess things up too. The Neuro who did the test did say the repetitive stim test looked normal. I asked her what does that mean and she said nothing really because you have the anitbody. I am going to be livid if they don't want to give me meds because of the EMG! I had 2 Nueros in there for the single fiber test and kept hearing them say "oh, that's a really good one" Not sure what that means but hopefully it means they saw something that will make them know what is going on. How in the world can they disregard the antibody test when it clearly shows a pos reading? I really think alot of Drs. treat patients as science experiments. During the test yesterday one of the Drs. said to the other that he had gone to the head Neuro to discuss how painful the single fiber test was for the patients. He said he looked at him and said "oh well" He then said he told him you are not the one having it done nor are you the one watching the patients in pain. The other Dr. kind of shushed him and said we'll talk about this later. I am certain that was not something he should have been discussing in front of me but it made me realize that if they don't actually see us they don't have any compassion for us. I am being treated at KU which is a teaching hospital. I sometimes think they are alot more into the actual problem than the patient aspect of it. My mom went there for years for a blood disorder and I can remember her telling me she was so tired of being treated like a study and being poked and prodded on. I understand the importance of teaching but there needs to be a middle ground!
Kendra