I went for my 31st infusion yesterday and got new RXs to hopefully get me kickstarted into some sort of action. Both are on hold pending Dr approval though, they don't consider the RX written by the Dr approval I guess... Nuvigil (I won't be on the old-vigil anymore if it works ) also Topamax for the late afternoon headaches. I slept until 12:10 today and didn't really want to get up but my bladder made the decision for me.

The infusion nurse Susan at the Dr's office is hilarious. She's getting her NP license, going to school for it. I told her and the neuro I hope she stays at the neuro's office so she can be my PCP replacement. She was floating on air after I said that and I'm glad. She's so awesome. Although she has a bit of a temper and gets riled over somebody else in the office.

My neuro came in later and said if she goes to work somewhere else after she becomes an NP, and works for a doctor who is a "moron" she'll either kill him or quit after two days. And I can see that happening too, lol.

The neuro said that spring and fall, with the change of the seasons, are the most common time for flare ups. I didn't consider my overwhelming fatigue to be a flare up but I suppose it is. Of course I didn't call the office about it instead just waiting for my infusion day. That frustrates the neuro but if it were something really bad, he knows I would call. (Like vision problems or inability to walk or something.) He knows that I know the signs of PML too and the DH knows what to watch for.

I'll get the new RXs on Monday if they have them ready at our slow pharmacy. I had to go to the slow one because there was a coupon for the Nuvigil for $50 off.