Hi All-

mrsD- Sorry for the typo. I reread all I peck for things like that but obviously don't catch all.

AnnieB3- Thanks for the backup!

My neurologist defined mine as being the bulbar form of MG and I did find it mentioned as such in other references on the net. It was also said that people with this form have an 85%+ chance of it developing into the generalized form of MG. That led me to believe it was a different manifestation/classification than the general. Doesn't much matter though- ya either got it or ya don't!


I wasn't a bit afraid of trying the huperzine. I knew what to look for if an overdosing occured. The alzheimers trials were using 200 mcg orally per day and the MG trials were using 400mcg per day injected. I felt plenty safe at trying 100mcg orally per day.

I'm NOT having so much trouble with my MG. That's been the point of my posts. I am almost completely symptom free in less than three months of proactive, consistent self treatment. Granted, it's not over 'til I'm dead. Tomorrow I could have a major relapse and be back to ground zero or worse. But I doubt it. That's why I asked- has anyone ever gotten better by doing nothing? If not then I must be doing SOMETHING right.....even if I'm not 100% sure what it is!

Would it have hurt for me to have tried the mestinon? No probably not. I did have it on hand if all else failed. But it was not my choice to treat symptoms but rather to try to go after the cause. Honestly, I don't know the exact cause and probably never will. But I can tell you that either by accident or design what I'm doing does work. And if a disease is eliminated from the body and never returns, is that not a cure?

AnnieB3 says:
"And I believe that if you sleep enough, get stress out of your life, deal with any traumas, eat whole/organic foods, etc. that you can make your immune system healthier."

AnnieB3 I could not agree with you more!!! That and some vitamin and mineral supplementation is basically all I am doing. Give the body what it needs and it will heal itself. It just takes time.

"I hope you can find what works for you and your MG."

Thanks - I think I have. Hope so anyway!

Oh and Annie- I live in S.East Arizona. Desert. Can't get away from the heat. Strangely though, the heat never made my symptoms worse. Many a time I even felt better after heat and sweating, almost as if I were eliminating something negative through the pores. Thoughts?

Aries51