Girija-

You are in a unique position to do a great deal of good. Would you consider writing your transformation up in more detail and directed at nt only PWP, but particularly at the science and medical communities? And once done, put it under a Creative Commons type of copyright and release it so that we can spread it around?

There are very, very few in your position. Drawing on two medical cultures - one the newest and the other the oldest. Have experienced the role of both patient and scientist. Quite a bit to work with there.

I don't know if you have run into this or not, but Anne Frobert quickly found that her colleagues unconsciously shifted their view of her to that of "poor patient" from "my colleague" and were by default dismissing her observations of her condition.

You have something unique and very powerful there.