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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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It's my understanding MS IS a progressive disease.
I think that regardless of what label a doctor gives it, it is always progressing. I know some lesions do not seem to affect anything but any damage, even silent damage, is STILL damage. There's underlying disease happening in the gray matter even if you cannot see it in the white matter as lesions (which we see in MRI images)
We may be able to slow it with drugs, but there is STILL not enough known about MS, what the cause is, who is going to get it, who may only have a "mild" course, who is going to get hit hard, and who will get the worst variety, why some drugs work better for some than for others, etc.
Until there are more answers, we are all blind mice in this battle and all we can do is try to help ourselves and be educated and support each other and those who come after us.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
. I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09 .
Negative for JC virus antibodies! .
I'm doing alright and making good grades,
The future's so bright, I gotta wear shades! .
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