We like to think of the labels as just that, labels. My hubby is spms and in a wheelchair but many with spms are not in a wheelchair. Some with rrms use a wheelchair, some don't. Some with ppms use a wheelchair, some don't.

It's a toss up and something I think docs just use as a reference point in the progression. Rrms tends to have more flares with some improvement after said flare whereas spms tends to have fewer flares with little or no improvement if that makes any sense. If it doesn't make sense, your not alone. lol

There was a time my hubby was told he was rrms, then the fun began. He was told spms, chronic progressive, then primary progressive. This went on for a couple of years until I finally told the neuro to pick one and stick with it. He chose spms. haha The neuro said based on Jim's progression they were having a hard time deciding which stage he was in because he would improve, decline, go long periods, etc. So, if it's confusing to the docs it makes sense that it can be for us too.

Like Becca, we don't really don't give the labels much thought anymore and just do what we need to do to carry on. After 22 years you just go with the flow.

to you.