Shari, You mentioned that the IVIG might be making your skin "burn." Do you have any other medical conditions that could be making you feel more weak?
Endocrine, rheumatological or neurological conditions can cause those symptoms. It might be worth a trip to your primary doctor and have them think about what else might be going on. A neurologist won't be able to do an overall check of other possibilities. They are a specialist, not a generalist! Definitely get your morning, fasting cortisol checked (adrenal function).
It sure doesn't sound fun, whatever it's from!
Annie