Thread: Syringomyelia
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Old 10-04-2009, 09:58 PM
brainiac brainiac is offline
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Join Date: Sep 2009
Location: Illinois
Posts: 28
10 yr Member
brainiac brainiac is offline
Junior Member
 
Join Date: Sep 2009
Location: Illinois
Posts: 28
10 yr Member
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Quote:
Originally Posted by Stetson View Post
I have just been told I have this disorder, to tell you the truth I'm afraid.I have 2 young kids and a wonderful wife that I'm afraid of putting a burden on them. What can I do?
I was diagnosed with the same thing, the doctor said and I quote "this is the biggest Syrinx I've ever seen I don't understand how you are not paralyzed?" After 4 surgeries and a shunt hopefully things will get better, but as for you be careful with hot and cold items, please do your research you will find that some or all of problems that you are having could be related to your syrinx due to the pressure being placed on your spinal cord. I also have 2 young children, my oldest 11 saw me have a seizure right in front of him,it is very difficult for them, dont forget that you are Supermom to them and nothing should be able to hurt you, so I hope the best for you, any way that I can help please feel free to ask.
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