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Old 10-05-2009, 06:58 AM
Steve47 Steve47 is offline
Junior Member
 
Join Date: Sep 2009
Location: Eastern Shore of Maryland
Posts: 7
10 yr Member
Steve47 Steve47 is offline
Junior Member
 
Join Date: Sep 2009
Location: Eastern Shore of Maryland
Posts: 7
10 yr Member
Default New Diagnosis of Myasthenia Gravis

Hey folks,

I'm happy I've found this site. I am a 47 year old male who was diagnosed with MG about 5 months ago. The insurance company won't allow the blood tests usually used, so the neuro put me on 30mg of mestinon every 4 hours around the clock. My symptoms were a weakened voice [I pastor a church, so this was extremely worrisome], no gag reflex, and aspiration. I would also get exhausted easily and suddenly.

After one day on the mestinon, I felt like a new person. I have not lost my voice except once or twice while under extreme stress, and I have a gag reflex again. I still get exhausted, but try to budget my energy. I would say I am 80% better 80% of the time. On this reaction to mestinon, and not on any medical test, my neuro diagnosed me with MG.

I am wondering if anyone else has been diagsosed with MG solely based on their reaction to Mestinon. My neuro told me that is pretty much all the drug treats, so it is a pretty safe assumption that is what I have.

Thanks for any answers or comments.
Steve
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