The measurement sets we are asked to comment on are a little hard to find. Go to
http://www.aan.com/globals/axon/assets/6329.pdf

for the 45 page document. I am also glad they are seeking our input, but the comment period started Sept 9th. it is over Oct. 9th, yet the first notice we were given was on Oct 2nd. Alot to read and digest and comment on in a week. I read it, but still not sure what these measurments are for, but they seem to have somethhing to do with coding for insurance. It states they are not to be used as clinnical guidelines. I would like to understand better how they are related to improving individual patient care. Can anyone else help out with this?
I would also respectfully ask the AAN why there wasn;t even one PWP on the committee that wrote the measurement sets (see p. 3 of the document)? There were reps from PDF, NPF, APDA, medical orgs, insurance companies --- but no patients.