Quote:
Originally Posted by EE03
What do any of us know. We just get to live with this *&#$. I was confused and amazed when the NS said the muscles were the cause of it. I found a detailed picture of the nerves and they do exit in the muscles(probably not the best description, but all I can give right now). In theory, it makes sense, but right now, the stupid hot poker keeps getting rammed up the back of my head and I don't really like it. Anyway, my PM doctor was going to do a direct ON block and he didn't. He said that the RFA to C3 should take care of it. Time will tell, but right now, the ON's are pretty angry about all of this. I upped the dose of klonopin and I'm feeling pretty spacey too. And, I have the dizziness again that I got with the diagnostic blocks, so I'm begining to think that anything thats done to the cervicals effects more than I'd expect or my wiring is totally screwed up. I think i'd buy the latter more. And I'm watching the stupid calf muscle that keeps spazzing to see if all this has any effect on it(that may be related to the radiculopathy junk I've got going on). Oh well, our similarities are weird  |
Wow didn't know there were others like similar to me out there. I was in a car accident when I was 18, almost 14 years ago now, and to make a long story short I have to get nerve ablasions done from C-2 - C-7 on both the left and right side along with with burning the occipital nerves on both sides. In addition that I am on Kadian, baclofen, savella, topamax, flector patches, percocet for break through pain, which is a joke and all of this still barley keeps me functional. I still am in a lot of pain on a day to day basis and have to work full to to have insurance so I can go to the doctor to get all of these procedures and medicines. However, I am very fortunate to have wonderful doctor's, both my PM and neurologist who are determined to find something better and will are always there for me, sorry to hear that all of you have not had the same experince with your doctor's that I have had with mine though. I am at the point, however, that I just don't think I can go on the way I am and am afraid to bring up the subject of disability because of my age but I would rather die than go on living like this. I know this sounds drastic but I haven't any quality of life. I work and spend the rest of my time in bed trying to ease my pain and when I'm not working I don't get out of bed at all, I just hurt too much. Any how I don't mean to go on because I'm usually a positive and upbeat person which is part of my problem I think becuse I don't seem sick it's hard for people and even doctotors, to some extent, to fully understand how bad off I really am, but I try not to dwell. Any how best of luck to all of you and if you have any questions about my experinces please don't hesitate to ask.
Christy