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Old 10-05-2009, 08:32 PM
kochsr kochsr is offline
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Join Date: Oct 2009
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10 yr Member
kochsr kochsr is offline
New Member
 
Join Date: Oct 2009
Posts: 1
10 yr Member
Default Generic Cellcept (Mycophenolate Mofetil)

Hi Shari,
New to the threads here...hope I'm doing this right! Anyway, I've been dealing with ocular MG now for about 30 years. I have tried just about every imaginable treatment/medicine available. I recently started Cellcept about 4 years ago as well, and has worked for me really well. I got down to 15MG every-other-day of prednisone because of it. I've never been that low on prednisone. Well, my insurance company then switched me to the generic version (Mycophenolate Mofetil) about 4 months ago and my condition gradually worsened. I had to up my prednisone to a maximum of 80MG a day to no avail. My doctor then suggested that I try an IVIG treatment (very expensive) to put the MG into remission. It worked...thankfully. I mentioned to the doctor about the insurance company generic switch, which prompted him to scrutinize my blood work that I have done frequently. Well surprise...surprise, my blood work showed a steady decline in various areas since the "switch". He immediately called my insurance company to let them know this and to out me back on non-generic Cellcept. He also told them that they are now fronting the bill for the IVIG treatment, which cost $20,000, because of this. Go figure...about 3-4 days later I received cellcept in the mail! So yes, Cellcept is far superior to the the generic version, at least in my case it is. I would suggest that you talk this over with your doctor.


Quote:
Originally Posted by Shari_W View Post
For those of you who take Cellcept, have you noticed anything different in your MG symptoms since switching from Brand name CellCept to Generic?

I have been on Cellcept for 4 years and my MG was under control. I began feeling MG symptoms again around late May and that was when I switched from Name Brand Cellcept to Generic. I am seeing a MG specialist on Wednesday and just wondering if anyone else has noticed anything different when they switched.

I am probably reaching but I am very in tune with my body and can usually pinpoint when something has an effect on my MG. It's just strange to me that after years of being on a treatment therapy of Mestinon, Cellcept and IVIG that my condition has changed like it has. This one has had me stumped for a few months now.


Thanks
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