thank you all for your warm welcome,

I agree that knowledge is power, but many times patients know more then physicians, about their specific disease.

I personally have learned much more from other patients, and other health professionals then from physicians, regarding this illness.

and this has made me ask myself a lot of question about what is happening to modern medicine...

it is true though, that my medical background probably enabled me to have better access to the medical literature, and to various experts (physicians and scientists) around the world.

and I will be more then happy to share this knowledge with you.

but, my current neurologist is a very humble and caring physician, who honestly tells me- taking care of you is like sailing an uncharted sea, but I promise to be honest with you and do my best. and honestly tells me that he, as most neurologists, has very little understanding in respiratory problems, and is quite happy that I have others that take responsibility over that.

and after all I have been through, I could ask for no more, but would not be ready to settle for less.

alice