Linda said:
I would also respectfully ask the AAN why there wasn;t even one PWP on the committee that wrote the measurement sets

I agree, Linda. I am so tired of people writing our future not taking the time and effort to ask us - those who lives with the disease dayto-day - what needs to be included in our care plan. Every other "service" asks for consumer input, so why not our health care?

and the short time limit is a bit ridiculous. It's like an afterthought - "Oh, yeah. We need some patient input here." (Like they'll read it!

GRRRRRR! sorry to be so negative. It is nice they asked.

Peggy