i ended up sending my comments. The comment form is set up so that each Measurement is separate -- so you can respond to one, two or any number of the measurment sets. The last box is for general comments. In here I wrote, "Thank you for requesting patient comments on these measures. However i noticed there was not one patient on the committee that wrote the measures. The perspectives of PWP should have been sought from the very beginning of this project, not just at the end."

If we want things to change and for patients to be treated as equal partners in our health care, doctors and medical associations like the AAN need to hear from us .... the more comments about including patients at all stages, the better. As Conductor wrote --- this is our chance for input.