The question of how they find people with PD and involve us is a worldwide issue with a wholly possible solution - we are here, we all visit our doctors, and it is my belief that patient input can and should be channeled through those we get to interact with, our neuros. A simple questionaire to fill in while waiting for an appointment could be a solution. There is a need to work in alliance and they too need to realise that. I will never understand how the simple concept gets lost in the rush to consult all the acronymic entities! Perhaps patient advocacy should start in the waiting room, those of us online, while we have a powerful voice, only represent the few, but can help motor decision making for the many. As such there is a worldwide lack of patient empowerment, and it is time the medical profession geared its needs to the patient not itself. A unified approach to advocacy could be a start in the right direction....... Laura this is something that could be raised at the WPC.....

Lindy