Quote:
Originally Posted by JCPA
Most of you have had MG for a whole lot longer than I have.
Why is it that I can take my meds as directed...have many, many good days.....feel good....and then boom....I have not over exerted myself or did anything to cause it to come back....with a vengeance (spelling???). It just seems that when it rears it's ugly head......I am miserable.
Don't get me wrong, I am soooooooo glad I don't experience the breathing and swallowing problems.....but I can't move hardly and every muscle seems to hurt or feel weak.
I know this is what it's all about........all I know is MG STINKS! BIG TIME! 
Whew...if fell better.
JJ |
JJ,
there are never good answers to "why" questions. so I always prefer to ask-how.
how can I utilize the relatively good days, in the best way?
how can I find the way to lead a reasonably productive life, despite my limitations?
how can I plan, knowing that every plan in this illness is subject to change, on the verge of the moment?
how can I make those hard times, and moments of depair as short as possible?
how can I find new hope, when a previous one was shattered? ...
and "how" questions almost always have an answer that you can find. it may take some innovative approaches, but it always leads to something practical that you can do. and give you some sense of control over what is going on.
alice