Yes! Yes! Yes! I have those sensations as well! After NUMEROUS MRI's and x-rays, my neuro still has no idea what is going on...I also have serious pain that keeps me bed ridden some days - in the hospital I was given morphine every 3 HOURS to keep it @ bay, but it has subsided since I started Neurotin (sp?)........what a RELIEF!
I now walk like an 80 yr. old, but @ least the pain has gone AWAY - I do still get the stiffness - hence the walking like an 80 yr. old - and I still have the tingling sensation but have learned to kind of ignore it......
What meds are you on?
If I ever do find out what is going on I will let you know!
BTW - welcome to neurotalk! As you have already seen, there are so many amazing and truly caring people here who know what you are going through! You are going to love it here!
MG effects all of us in different ways - that is why it is nicknamed the "Snowflake" disease....some of us have "mild" - if you can call it that, ocular MG, while others have acute MG - not fun! Regardless of the DX, all of us suffer quite a bit with MG - that is why I love this site! People do not judge you b/c they
KNOW what you are going through.....
Anyway, I just wanted to welcome you and let you know that YOU are NOT ALONE!
If you find out what is causing the problem, please let me know!
Big hugs!
Erin
Quote:
Originally Posted by Inquisit
Hi,
I just had an EMG.
I wonder: Do any of you experience sudden muscle stiffness /heaviness in say your buttocks to back of legs that then goes away?
Anyone out there with LEMS? I Have trouble around the eyes and neck, legs but NOT with eyes as such. Have a tingling sensation, rather like soda in arms and legs and upper back region.
It'll take a month at least before I see the neuro about my symptoms. Am really worried.
ANY input would be comforting. Thanks to all those who welcomed me in the Newbie part of the forum  |