Laura made an excellent point. I agree with others point that patient's participation is needed, but the question is how do you go about getting a "real" representative for patients?

I speculate that AAN is viewing various PD organizations as "representatives" of patients. Whether it s a valid choice or not, I cannot comment on that, with my limited knowledge about these organizations.

I read AAN's guidelines carefully and brought it down from 45 pages to 4 pages of relevant info. Overall, I found this document to be quite comprehensive and well thought out guidelines. Document also had good rationale for the 10 parameters chosen to evaluate PD. I posted my version of Unfortunately, copyright issues prevented me from posting the summary here..

I sent my comments and additions to AAN about the guidelines. I also asked a few questions about their mode of evaluation, comparison and analysis of alternative treatments. Lets see if I get a reply!

Girija

Girija