I dont have a diagnosis either! So dont panic. I had one then it was removed a year later as I'm negative on all blood tests and SFEMG and EMG. I hope for the day that someone just gives me an effective treatment, I don't call what they want to call it, Purple Pixie Disease is fine by me! LOL I just want to be treated and get better.

I know what you mean about going to A&E (ER to our American/Canadian etc Friends). Ive been in 6 times so far this year, not all with breathing problems. I get fed up with the "haven't you got a diagnosis yet" or "hasn't he made up his mind yet?". I hate the fact you lay on a hospital trolley for 4 hours until they decide you better be moved to a ward or discharged. I have spent 3 visits in a hospital bed for 5 days with no treatment. It gets frustrating, but it must also be the same for the staff as theres really no reason to keep me there unless you are actually going to do something.

With MG you just don't know how your going to be or how the disease will progress. Just because you are 53 doesn't mean that you will have the worst type. What you will learn on your journey is the medical profession know quite a bit about MG but they dont know it all! As patients we are the ones that know how it affects us.

I hope this helps
Love
Rach