Welcome to the group. I know the waiting is so difficult isn't it? Please do not hesitate to go to the ER if you are having breathing problems. Diagnosis or not, if you cannot breath properly you must be helped. I know what you are talking about when you say you cannot reach your neuro by phone. My neuro has an answering machine and I get so upset that I cannot speak to a person when I feel I am going downhill. Well hopefully your answers will come soon. Take care ~ Melanie