Hi Nick,

I haven't heard of it. but would be glad to know if you have any information on that.

calcium and magnesium are essential for proper muscle contraction, so too much or too little of them can cause problems, but I am not aware of the role of manganse in that.

as to your qustion regarding my symptoms, I basically have involvement of every muscle group, which varies in severity. my fluctations are much more extreme then what MG patients usually have. and that has preplexed quite a few physicians. (including myself).
I guess the most troublesome is my respiratory msucles, because you can do OK even if you are unable to walk, but not so if you are unable to breath.
as long as I have my respirator with me, I am fine, but it becomes a problem every few months, when it needs to be readjusted, and then even with it, I feel that I can hardly breath, and need to see my pulmonologist ASAP.

I am really glad that I have found the way to still be able lead a reasonably productive life, and not give up all of my personal and professional dreams (although obviously had to put aside some of them).

and am quite hopeful that at some point they will gain a better understanding of those unusual and rare myasthenic sydromes, like mine, and I will be able to run!!! (like my neuro promised me I would after my first IVIG).

so possibly 20 years from now, when all my friends will start complaining of not being able to do what they did before, I will be the exact opposite!

alice