Quote:
Originally Posted by AnnieB3
I'm sorry, Alice, but no, you can't predict that it will be unpredictable. Autoimmune diseases don't always have a rhyme or reason. You can take really good care of yourself and, therefore, your MG and still have it "take you down."
Like Lizzie said, it is ultimately unpredictable. We've talked about this before. Thinking you can control a disease like this is dangerous. Help it along by sleeping well, eating well, etc., yes it's helpful but it doesn't mean that MG won't surprise you.
Like you said before in another post, Alice, you like to be honest with your patients. I am bluntly (probably too much so) honest with everyone I know. Having a good attitude towards MG every day is a daily, if not hourly, struggle.
JJ, Thanks for the info on the graphics.  I wish I could spin like that. |
Annie,
being honest is great, but doesn't have to be blunt.
in fact most people will be more ready to accept some unpleasant truth, if it is gently given to them.
as to control- I am the last person on this planet to think that there is any way to control this illness. I have long ago given up on that. (not that I didn't try).
what I meant was control over your life, despite no control over your illness, and that is achievable, at least to some extent.
alice