This is something I find hard to understand.

all the neurologists I have talked to, have an excellent theoretical understanding of this illness.

yet, most of them can't seem to be able to "translate" it to real life.

they all know what fatiguable weakness is, they all know that the fact that a patient can push your arm once in the clinic does not mean much.

they all know that what the patient tells them about his symptoms is at least as important as the brief and "snapshot view" examination they do in their office.

and they all know that this illness tends to fluctuate, and the fluctation may be quite "crazy". one even said to me- it's this illness that is "crazy" not you, when I felt quite embarassed to tell him about those obscure symptoms that made no sense to me at that time.

sometimes I have a feeling that they have in mind some "ideal/ classical" MG patient, that has well defined symptoms, well defined adaptation to this illness (not too much, as then you function will be too good, and not too little ), well defined emotional responses, well defined personallity, well defined response to treatment ( just in the right pattern and tempo that they expect for each medication),

and if and when, you fail to fit this prototype, then they really get lost.

or mabye as I have said before its just me, and a few more "rare birds".

alice