Physicians, no matter their education or lack of do not have patience for CRPS patients. Its easier for them to write an RX. Too bad they cannot be honest & say, "hey, let me research who would be the best pain management physician for your condition". It's maddening & undeserved.
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Originally Posted by tiredofpain07
Hi everyone,
I was just wondering if anyone else was having trouble with getting their doctor's to listen to them?  It seems that no matter what I tell the pain doctor, the ortho or any doctor at the emergency room---they all have the attitude that they know more than I do. Half of the doctors at the emergency room---haven't even heard of c.r.p.s---let alone be able to do anything for me. It took me months to get the pain doctor to give me something stronger for the pain---he did give me a long acting pill that I take twice a day---but he refuses to budge on the perocet even though I've been on the same strength for over 2 years.
When I go to see him---I can't be in pain, even though its over 50 some miles & thats one way. If I am in pain then he has it in my notes that I'm to be put on the schedule for surgery for the spinal cord stimulator---I don't get a say in it at all. The research that I've done says that a stimulator doesn't work, there are even doctors that won't advise their patients to have it. He told me that the success rate was alot higher than I've read about, not that it surprises me any at all--not after all that I've gone through with them over the years.
I know that this might sound stupid but why is it that all that matters to the doctors is MONEY?? I thought that they took an oath to "help" their patients---or is that just when it suits them?? The ones that have heard of this disease know that there is no "cure" for this & that we are the ones that have to deal with this pain on a daily basis not them so what does it hurt them to give us something that will control the pain??
I just want the pain that I'm in 24/7 to be better controlled than it is---why do they make it sound like I'm asking them to give me a million dollars?
Was just curious if anyone else was going through the same stuff that I am & how many of you there are.
Hope that I'm not the only one having these kind of problems with the doctor. Thanks & hope to hear from anyone else having these kind of problems & what you did to actually get help. Thanks.
Janet |