Quote:
Originally Posted by olecyn
I am new to the RSD forum. Usually on the THORACIC OUTLET SYNDROME forum. I have read so many posts & threads here & feel like a newbie in a very strange way. I have been on the TOS forum for years.......Wish I had come here when I was told I had RSD with my TOS. You guys are incredible here. So much knowledge.
I learn more each time I come here about our CRPS/RSD/FM issues. Can u hear me say "O My gosh, look at this, thats what I go thru, thats what I feel like, I didnt know that, o look at this post. o, o, o"
Can anyone explain why the states & docs do not acknowledge FM or RSD as they are dilbilitating to the fullest extend from the original injury & compromises our day to day lives more than they know. No matter how u look at it I am here to learn & add my 2 cents once I feel more comfortable with you~all. Our foundation is geared towards education in the professional & complimentary services world to help others with CRPS, Chronic Pain, FM, Depression & of course TOS. The TOSS foundation, www.tossociety.org was founded & dedicated to me by my hubby. I am learning so much more being here & dedicated to add pages of information in all relating conditions. Any suggestions welcome as I am a contributing honorary Board member for the BOARD Members & team. |
Hi Cyndy,
I, too, am so grateful to have found Neurotalk. There truly is so much compassion, kindness, and education here. It is so wonderful to have this kind of understanding. So WELCOME.
I am so sorry you have TOS and RSD & FM. It's difficult to acknowledge what you don't know about. But the good news is, Social Security Disability acknowledges RSD as grounds for disability. Many have applied and were accepted. My Dr. wrote a brief note to DMV and I have a handicap sticker to hang in my car. It's wonderful when I get out, even if my hubby or daughter are driving, we can park close. There is information on this board about applying for social security disability. My Dr. acknowledges RSD & Fibro.
as disabiling. He has written letter for my handicap sticker and said he will support me in applying for disability, if I choose to apply.
Cyndy, RSDSA is a wonderful organization. If you go there, you can put in your zip code and find the local support group. Put in your zip code, and you see a phone number and name of closest group. They usually are aware of the local RSD, Fibro, Tos Drs. I attended there annual meeting here in Scottsdale this year. It was wonderful. About 135 attended the first day and Drs. therapists attended the 2nd day.
One site I found an immense amount of knowledge is rsdrx.com Dr. Hooshmand is now retired, but still has web site up. He is in Florida. Under Puzzles List is 146 puzzles or questions with his answers. I have learned a great deal from this site!!!
Welcome to neurotalk, it is a wonderful group of caring friends. Take care and jump in when you are ready. loretta soft hugs
