Hey Kendra,
It sounds like you are finally getting some answers and results. I know you are relieved to find a good doc too!

You spoke about family dealing with MG. IDK if you have ever read this but there is an article called "the spoons theory" that someone wrote about a chronic illness and the analogy they used to explain to their family what is going on with a chronic illness. Just google it and you can find it. I actually typed this up in my own words and let my family and friends read it to help explain why I sometimes can't always participate when I would truly love too.

Hope you can try the mestinon again and you can tolerate it at a low dose too!

Take Care
JJ