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Old 10-14-2009, 12:53 AM
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Join Date: Aug 2006
Location: East Coast USA
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15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
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Pl,
I am sorry to hear that you are not feeling well. I am in a relapse too. I called Skip and asked him about the LDN. He said it is not a cure, people still can relapse on the drug, but maybe not so badly.

He said to up the dosage to 4.5 mg, if the Neuro would agree. I upped the dosage and I feel like I am getting over the relapse in record time too, like Kelly said.

Pl, also I don't think you are on LDN long enough to get a positive all over response yet. Only since August?

I even had Vertigo which was sort of new for me. I had in the past some double vision and dizziness but the spin and nauseous feeling is icky. Since I upped the dosage my spasticity is all gone too. I thought if I upped it, I might get more spasms. Weird, but good.

I had an MRI of my Brain, first since 2-2007, and no changes and no enhancement. Stable MRI. This relapse brought left sided numbness and the MS Hug worse, but my balance and gait were not effected. So I doubt steroids are needed. Vertigo is leaving after 3 weeks.

I have the MRI films and report but waiting for the Neuro to call and say the LDN has stabilized me. Also my blood work was normal.

Kelly, my Endo doctor called yesterday and upped the Thyroid med to double on the weekends only. I forgot to ask for generic, yours is cheaper than mine. i start this weekend, blood work showed still hypothyroid. I even called her to see if Vertigo was from the drug, she said no way.

So this is the first relapse ever, with new and old symptoms that seems to be going away early (knocking on wood). And my spasticity is gone since upping the LDN to 4.5 mg.. Who-Hoo

I had a good clinical exam by the Neuro, even though numb on the left side, face, head and vertigo, and a few other old issues. All seems to be getting better on the 4.5 LDN and 'REST".

PL, stress and moving are the worst. I relapsed so bad when those happened to me. Get more testing if you think you need it. I was bitten by about 10 or more ticks in the last few years. I had the bull's eye a three times, but show negative. I had Doxycyline a few times. Bugs love me. I am a bug magnet.

If bees could cure MS I would be cured. I have been bitten constantly by all kinds. Step out the front or back door and a spider or something gets me everyday. Being blonde I think I look like a sunflower or a yellow rose or mum.

Rest is the key, PL, even with LDN. We tend to feel better with energy and overdue it, or expect too much from the drug.

Trust me, the DMD's have never helped me like the LDN has. Maybe there are other drugs out there that might help other people, and more coming out of the pipeline, but for now this is still my drug of choice. JMO

to all of you.
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"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
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