Hi there; Wondering if anyone with experience of hearing loss attributed to MS could give their experience. My background: 2004 they discovered lesions - and then I was diagnosed finally with MS in April 09. We are in a wait & see cycle now with no medication - being checked every 6 months with MRI. I also have RSD in knee after failed knee replacement and Ankylosing Spondylitis - form of Rheum Arthritis only in the spine. I have been noticing the past few months of my hearing going way down in both ears. Its to the point I cannot hear from one room to the other, hear tv without volume way up, ect. Went in and had hearing test done and I am at 30% hearing in both ears. The dr. stated he believed it was from the MS. He stated he did not believe my hearing would come back (not in a flare) and stated I should look into hearing aids.
If you have had hearing loss - did it ever come back with being from MS? This is my hope - but my husband is looking into the hearing aids for me. On top of it - his insurance does not cover them and I didn't realize how expensive they are! Besides the loss of hearing - I am having the loud humming noise in the ears from time to time. Please let me know of your experiences. I am getting so down - I am only 51 and having to walk with a cane or walker, and now hearing aids. I know there are people way off worse and I should be thankful for what I have - but the uphill battle is making me so depressed. Thanks.