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Old 10-14-2009, 09:21 AM
suev suev is offline
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Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
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Hey Kendra!

Glad you like your neuro and that your dx was made with pos antibodies (makes it easier for the medical community...lolol).

Like the others have said, I'll bet your initial experience with Mestinon was too much too soon. I reacted badly to Mestinon in the Dr's office....felt light headed. So they started me on 15mg every 3 hours which only caused minimal increase in saliva ... and teary eyes! We kept that dose until the 'wateries' stopped (a coupe of days was all it took).

Then we lessened the time between doses with the same 15mg until no wateries. Then we slowly increased the dose and lengthened the time. I was on their recommended dose within a couple of weeks - and now have no noticeable side effects (luckily!!).

Some 'bodies' are just more sensitive to meds than others. Hopefully, your body will adjust gracefully with a slower introduction. It really is wonderful stuff!! And it's all I have had to use so far...very thankfully!

Good luck with it!
Sue

PS. Gald they are testing for thymoma - - but hope results are negative.
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