Member
|
|
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
|
|
Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
|
hi
Im so sorry that you are facing this alone and that the kids are poorly. Its hard enough looking after yourself if you feel bad let alone running around after others.
I get slurred speech and nasal speech. I tend to not notice until my mum says to me your speech is slurred (it sounds fine in my head!). I used to get nasal speech a lot when I worked or I would lose my voice. Slurred speech / nasal speech is a well known MG symptom. Remember ALS/MND starts with symptoms from the feet up, MG is head down.
I think the best thing you can do at the moment is take some sick leave and get some rest. You are heading for a trip into hospital if you dont. If things get very bad you will need to see someone at the ER, you can't be waiting on a neuro who may or may not ring you back. Can you change neuros obviously when you feel a bit better.
Is there any family that you could call in? I know you said you are by yourself, but is there anyone that could come and stay with you whilst you nurse the kids?
I really feel for you. I hope you get the help you need. You aren't alone
Love
Rach
|