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I realize everyone goes thru the same crappy standards. It plays much more physical, financial & emotional demands on the patient causing more pain. We are indebt 60K & have lost over 700k in wages the last 11 years. Not to mention the endless hours my husband has taken from his business & life driving to doc appointments, testing, AMEs, QMEs, attorneys, copying records, driving me everywhere since I need a caretaker to drive, lift & shop, laundry, everyday household chores. Isn't this a pain in the **** for not only the patient but the caregiver?
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Cindy, its so nice to have you, and Im so glad you have found the site to be so helpful. me tooo. TOS is bad enough but with rsd, so sorry to hear about your pain.The paragraph you wrote above," I realize everone goes thru" is my life too with my husband. We too have gone through exactly the same things in the last 6 years... shocking isnt it!!! When I was first told I had rsd we bought the book, Living with RSD, my husband and I looked and it, read a few chapter and said this will never be us and we threw it away! Two years later we had to order the book again, it was us. I guess the joke was on us. Glad to have you, cz