I expect this is going to sound like a stupid question, so apologies right now!

Do your symptoms vary? Mine do. Ive noticed that some of you report that your symptoms are bulbar, obviously they can vary in severity. My symptoms tend to hang around for a while and then go away.

For example earlier this year I had problems with choking on my own saliva, this would happen several times a day. Happened for several weeks and then went away.

Again earlier this year I had really bad problems with Nystamus (jerky eyes), every morning for weeks my eyes would jerk so bad in my head I couldn't see properly and I would end up going to bed and sleeping for a couple of hours to wait for it to pass. Haven't had it since June, yesterday I had a small episode of it.

Ptosis and facial weakness have been my symptoms for nearly three years. Last couple of days not much ptosis. I have been limiting my activities completely and being very good with the mestinon, which probably explains that.

Does anyone else have symptoms that plague them for a bit and then disappear for a while?

Or am I, as you have probably already suspected, very strange!LOL

Love
Rach