My symptoms vary.....I always have trouble with my arms and hands the most, but throughout the day, week, month, they will rotate to my legs, bulbar and face. I notice as they get more severe (usually due to an infection or cold or stress or heat...hehe or flavor of ice cream I eat, J/K) certain muscles start up. As a rule certain muscles are always affected, and somewhat controlled by my Mestinon....but the worse it gets, more muscles come into play. My neck and throat are usually on the more severe side of the spectrum...and when I have trouble with my tongue, I know it's time to retreat to my happy place and ride it out till my next dose, or the next day. I would like to add, the prednisone is slowly slowly reducing the varying-ness, and keeping my symptoms a little more stable throughout the day....YAY.

Jessica