Quote:
Originally Posted by nopainever
Hi To ALL of you!!! I hope you all are in LESS PAIN than I left with you in. If you aren't, I apologize.
I just wanted to fill you in on why I haven't been here in 9 mos. So to start of to say that I had my second daughter, Starr Lynne, born on Sept 23rd, and she is still in the NICU and I stayed 2 weeks after my c-section because my systemic full-body RSD really never went away during this pregnancy and seemed too show it's demonic self throughout my entire hospital stay. I was on a dilaudid PCA pump for 1week averaging 1ml per every 10min. Then 200mg Demerol IM BID. I didn't see my daughter for 1 week I was in so much pain.  
The hospital calls themselves a "comfort hospital" and didn't even monitor my daugher for a second before looking at my chart seeing I was on the Fentanyl Patch and starting her on Methadone immediately. Now, she has been there almost a month and will be there at least 1 more. We have our hands tied and my husband and I feel like drug addicts around these people. We can't help but feel this way. They never see Chronic Pain babies, they see crack and meth and heroin babies that are turned over to Social Services and the City.
We are depressed. I am more depressed and anxious on top of this Gosh Darn RSD. PLus my Best Friend, My MOTHER, DIED 6 weeks ago, right before I gave birth to Starr. She tried so hard to make it, but couldn't hang on.
Well I Love you and miss you all..Going to feed my princess Starr right now. 
HUggs ,
Heather
|
Hi nopainever,
Thank you for sharing your wonderful news of a new baby girl-Starr
What a blessing she will be to your family. I'm so sorry you been thru such a difficult time in the hospital. Remember, you are the paying patient and nurses and Drs. work for YOU. I also had a c-section (before rsd) and I know how sore you are. A nurse came into my room my 2nd day and was going to adjust my bed. I said please don't touch the control, I'll gradually put the bed up myself with the controls. She grabbed the controls out of my hand and pushed full speed ahead. About tore my stomach in half. I was in tears and told her she was to never come in my room again while I was in hospital. What she did was inexcusable. Then I told her to get out. Like others said so well, you deserve to be treated with respect. You treatment shows the lack of education of the medical profession when it comes to RSD. As if we don't have enough pain to deal with, and then judged by professionals that should know about RSD.
But focusing on your precious new baby girl will soon make those actions be a faded memory. Sept 23 is my wedding day. We just had our 42 anniversary. And our daughter turned 30 4 days later.
I am so very sorry that your mom passed away. That makes me feel so sad, recalling my mother's death before our daughters birth. My Dad lived a year after she was born. I hope you take time to mourn your mother's death.I didn't right after her death, but when my Dad died, I was helped so much by seeing a psychologist. Journaling, about and to them was a real help in resolving my pain. Hospitals usually have support groups. I've been to grief support groups and has helped somewhat, but one on one is better.
Please take care of yourself while also caring for your increased family.
I hope you body calms down. Are you on any anti-anxiety meds. For me, lorazepam has calmed my sympathetic nervous system down. Thus helping my pain level.
Take care, your friend, loretta, soft hugs