Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Tyson, Well, I'm afraid I do understand. I know how important sports and physical activity are to some people. Giving it up would be like my giving up the ability to be creative (I'm a designer/writer). It would kill me.
What did your doctors say about when you could lift weights? They are the ones you should listen to about timelines. Just like how someone who has had a knee replacement can't do stairs until a certain point, or go walking (or running) afterwards for awhile. So give your surgeon or doctor a call. You need to heal from the thymectomy or it will either not heal well or not heal at all.
It's great that you are going into remission. Did your neuro tell you this? It has to be an objective finding from a neuro to be "official." But with MG, if you do too much, you can go out of remission. I know it is not fair. I know it sucks. But is running and lifting weights really more important than your life?
There can be a balance between lifting weights and MG. I still at least attempt to keep my muscles in shape. It's different for everyone with MG. Some people can't even lightly dust their house let alone lift weights.
Just because I'm not a guy doesn't mean I don't "get" the whole physical thing. I love and I mean LOVE sports, mainly baseball and football. I was even a linesman in high school my senior year after I gave up being on the danceline, so I could be around the sport. I was diagnosed with MG in 2001 and learned in 2006 that I've had myasthenia my entire life (again, long story). I could never do sustained physical activity at any point in my life (thought I had to try harder) but that didn't mean I didn't still WANT to.
You can have a craving for something, almost an addiction, and still have the craving even if you can't do it. It's one of the hardest things to overcome. No, I'm not saying you're addicted to being in top physical shape but if it's more important than your life, you have to ask yourself why.
I'm sorry that you are going through all this. It is obviously causing you a great deal of frustration. Talk to your doctor. Maybe even get a consult with a physical therapist (think of it as retraining your muscles). Then decide for yourself what you need and want to do. I hope it works out for you.
Annie
Last edited by AnnieB3; 10-17-2009 at 06:04 PM.
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