Hello Gravyboat and Welcome to Neurotalk! You will meet many great people here who i'm sure will try and help you in anyway they possibly can! I'm not sure what i'd have done if I hadn't found this forum - it's helped me so much and it's so nice knowing that people here actually understand what i'm going through fully!

I'm sorry to hear that you have been diagnosed with RSD! I hope you can find something that will help you soon and put your RSD into remission.

I have RSD in my left leg and both arms. I developed it when I was 12 years old after an ankle sprain and am now 14. I have tried all sorts of different therapies and medications but none have really helped so far. Ketamine helps me a little but my doctor doesn't like me taking it too much because of my age so I am only to take it when I am in a really bad pain flare.

It sounds like you are fairly new into your RSD? That is good, if the RSD is caught within the first 3-6 months, the more chance you have of putting it into remission.

Do you see a Pain Management Doctor? They are usually really good at prescribing pain medications and doing nerve blocks that may help relieve some of the symptoms and/or put the RSD into remission.

Many people suggest nerve blocks which might be something for you to look into, especially if you are fairly early into the disease. If you do look into those though, please make sure your doctor doesn't inject into your RSD limb as that will probably make it worse!!!! I had a Guaethidine block when I was diagnosed with RSD injected into my leg and spent 13 months in a wheelchair as I lost all coordination in my leg. I later had a ring block when I had an ingrown toenail removed and developed really bad myoclonic spasms. I have had an epidural in my back however, and didn't have any problems with that thankfully - it is just believed that my RSD limbs are extremeley hypersensitive and can't tolerate any needles and injections at all.

I have a multidisciplinary team that treats my RSD. I see a PM Doctor, Psychologist, Neurologist for my spasms, my GP, Occupational Therapists and a Physical Therapist. I have also been to Great Ormond Street Childrens Hospital in London where I had intense Physical Therapy for 3 weeks which is what actually got me out of my wheelchair, though it hasn't helped with the pain, Dystonia and other symptoms I have.

I'd suggest seeing a PT. It's extremely important with RSD that you keep moving as much as possible (which it seems like you are doing) and PTs can be really useful in giving you exercises that may help.

Hope this has helped a little. If you ever want to talk, know that I am here for you!

Take care and hope to see you round more soon!
Alison