Quote:
Originally Posted by SandyRI
Dear Dew,
I am so happy that you did not hurt yourself when you fell. I am sorry too about the spasm. Do you think you should contact your doctor's office? I get the jolts inside my stomach and chest in the evening, but they've never really made my whole body twitch.
Can you try going to bed every night at the same time, even if you aren't that tired yet? Bring your laptop, the newspaper or a book and your cats with you and try to relax. I take Skelaxin and Ambien CR 12.5 mg at bedtime (Skel at 8 pm and Ambien at 9 pm) so that I ensure that I fall sleep. I may wake up periodically from pain, but at least my body is in the habit of "bedtime" and gets rested. My script for Skelaxin is for 3 a day, but I only take it a bedtime because it makes me so tired. It is a muscle relaxer.
Please take care and try to chill. I liked FMichael's suggestion of the "mindfulness based stress reduction" programs and actually just ordered a few books in that topic that my therapist recommended. I am hoping that by learning some of this stuff I can start to try to reduce the pain and other symptoms of RSD. Like you, I struggle with the sadness almost every day of what I've lost. My therapist has asked me in the past why I am not mad - I can't figure that one out. My RSD just makes me cry a lot. Anyway, I hope you get some much needed rest soon and that your spasms settle down.
XOXOX Sandy
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Hi Sandy,
I just wanted to add a couple thoughts I learned while in therapy in the mid 80's before my rsd days. In my family being angry was frowned upon, except of course my Dad could get good and angry. When I child isn't allowed to show anger, it in internalized and internalized anger leads to depression. Does that make sense?
To help to get true feelings outs, talk therapy is helpful, also journaling is so very important. Sometimes we don't know our true emotions till we are writing and then the tears begin to flow. I've even gone to the gravesite and read the letters to my parents. Sometime a person may mail the letter and sometimes we shred the letter.
Yes, Sandy, I've had spasms, electric jerks,jolts going thru my body and brain. It's very scary. There are meds that help with nerve pain, like anti-depressants I was on 3200 mg of neurotin to stop them, then changed to 400 mg. of lyrica. I hated the fogged brain feeling. The Lyrica worked better for me than the neurotin. Now I've been off both almost a year. They both caused weight gain.
I do go to sleep at the same time every night. I'm on a new med, that my Dr. did a 200 personal trial and it's a dream come true. I sleep 10 straight hours, and therefore have less pain, a lot less pain. My pain med of vicodin went down from 6mg a day to 2-3mg. and the anti-anxiety med of lorazepam went down from 6mg to 2-3 mg. I feel like a new person sleeping all night. My Dr. is neurologist, pharmacologist, and psychiatrist. Been seeing him 5 years.
He also just built two clinics with HBOT in each of them. My goal is to go thru the series and maintenance .
Please keep writing ==there is a great collective knowledge here. Although we all react differently to meds.
Take care and let us here how you are doing. Your friend, loretta soft hugs
