Interesting. I had mono when I was 18. Really sick. Then I got sick again when I was 38. I was tested for mono and it came back positive.
I never did regain my full strength after that. I knew I was getting older and thought that was probably the reason I was not feeling up to what I once had.
In 2002 I had my first episode of trigeminal neuralgia. Several years went by with very little happening and then ON and the down hill roll started.
I have not had anything that could be called a flare but my neuro exams continue to progress each time I do to the doctor.
Of course it is affecting my daily life. I still have 5 young children to take care of.
I only had two areas on my first MRI and the doctor attributed that to high blood pressure. I do have HBP but it has been well controlled. But that was the first neuro who did not think it was necessary to treat my ON.
10 months later the ON started up again and my neuro exam was not as good as it was. I went to a new MS doctor and was diagnosed.
So, I posted this question on two other boards and because I have no brain lesions and some c-spine lesions they are suggesting I be check for Devics. THAT is a scary thing to think about.
I am not sure what to do.
LA
Quote:
Originally Posted by TheSleeper
Dx`ed with mono early in 2003 and never right after, stopped working in October 2003 because of a mysterious illness being called Chronic Fatigue Syndrome.
Walking problems in late 2004 lead to the start of neurological testing, and abnormal brain mri but unspecific as to why. Thought to be small strokes, but a cervical spine mri as a followup. Lesions found, a couple LPs 1 incomplete next negative.
3rd neuro got it right confirmed my dx of PPMS. LOL, how am I doing? Normal for me, a bit different from normal people? Walking is becoming more and more of a problem, I`m Paul, I fall, season isn`t a factor. Losing the use of my left hand an arm, plus other issues. Stuff happens though so no problems!
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