Quote:
Originally Posted by tmullen
just recently i found this website and i'm so happy! i've had rsd for six years. and i'm sixteen years old. i orignally hurt my right ankle january of 2002 with an orthopedic thinking i had hurt my achilles tendon he operated on it even though all mri's showed that my achilles was fine. prior to the surgery i was casted for ten months. which we all know makes the rsd even worse. after surgery my suregon was amazed at how much pain i was in, and said he'd never seen anybody in so much pain. i went to a orthopedic at children's in san diego with them pretty much telling me it was in my head, even though the did diagnosis me with cprs. they never told us anything about it. soon after that i couldn't even get out of my wheelchair, i tried sympathtic blocks which only made me senstivity worse. i've been on cymbalta, lyrica,naurontin, and amitriptalyne. i now only take amitriptalyne and a few tylenol pm's at night. i found a clinic opening at boston's childrens hospital last summer, which me and my family went to for a total of seven weeks. it was horrible! 8 hours a day five days a week. three hours of pt. and hour of ot. phycology. and group physc. it was worse then anything, i never thought my pain could get worse after being there. even though my pain increased they got me out of my wheelchair. now after being home for a year i'm worse then ever. my pains all over my both legs and up my back. the worst i've ever had. i'm just looking for a little pick me up. and any suggestions. i'm so happy i finally found a place where i can talk to people that know exactly how i feel. its hard to find that.
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TM,
I'm so horrified to hear you story.
Although I've had this, rsd, and a few other choice things since '83, that doesn't matter other than that I understand.
Ask yourself some questions.
How are your doctors working for you?
(If they're not, find other's, who specialize in RSD. OK?)
How's they're treatments working?
(If not, check those 2nd opinions, from some serious RSD doctors)!
Please!
This RSD has the potential to spread full body, (which I have).
It certainly sounds to me like your doctors are "afraid" of your ailment.
Please, find someone who will take you, and your RSD, in hand, and treat it, correctly?
It is my humble opinion, that, it's not what you have going on now!
PM me, if you wish.
Click on my name,
AintSoBad
and hit Personal message....
I've had this since '83.
No small time.
I get upset when I see a younger person, not being treated by their doctors well.
Well,
Wether you choose to pm me or not, many other's here will jump in (weekends are slow), to help you!
I wish you the best.
Such a difficult thing to overcome for someone so young.
But, there are so many good people here, to learn from.
Don't jump into the "Pity Party's" which are here as well. I admit, I'm one for that too...
Stay on the Positive side!
As I said, TM, I look forward to speaking to you more.
Lots of folks who have had this demon for only a few years, are in their pity parties. And, even old ones like me, get into that Pity Party as well!
We need to stay away from that! Yet, we all go there occasional!
PM me, as you wish!
Pete
asb