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Junior Member
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Join Date: Jun 2009
Location: Tampa Bay Area, FL
Posts: 45
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Junior Member
Join Date: Jun 2009
Location: Tampa Bay Area, FL
Posts: 45
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Thanks for replying Anne! I have had a thorough work up when they first noticed my low oxygen levels. After my pulmonologist and cardiologist could not find anything with two heart catherizations (one at the Mayo clinic) and 30 specialists, they decided to see if I had a muscular problem and that is when he diagnosed me with MG.
I have seen a rheumatologist and she diagnosed me with fibromyalgia. The dermatologist says it is nothing they can do except hold pressure to the site for up to a year, but even that is not guaranteed.
I have been hospitalized 3 times in the past for the chest pain and after a while they just send me home. It comes and goes in different severity but it is always there. By the way, the last CT showed a shadow around my thymus but my insurance ran out so I havent had a chance to get another one. So, could a growth on your thymus cause chest pain?
I just want to know if this is normal for MG patients and how they have dealt or are dealing with it?
Thanks!
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