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Old 10-19-2009, 11:22 AM
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legzzalot legzzalot is offline
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Join Date: Nov 2008
Location: Fredericksburg, VA
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15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default Tysabri...it's my last option.

After reviewing my 2 page list of questions and comments about the Avonex experience the Doc agrees it is not working for me. Going in now to get my blood tested to see if my liver is reacting to it and that is what is causing the bruising. And we filled out the paperwork to start TY.

And if the Tysabri doesn't work? (I mean my track record for MS drugs speaks for itself)... Then i have the option of high dose chemo or clinical trials. So we are putting all of our eggs in the ty basket and praying for the best.

Oh and I get to go in for more MRIs. This will be numbers 12 and 13 since last October. The first words out of my mouth the Doc this morning were "I am willing to bet money that I have grown 2 new lesions since starting Avonex". And judging by my sx she thinks I may be right. So let's go take a picture of them!

The good news is she is proactive. And she listens. The bad news is she is terrified of me not being on DMDs and she wants me to stay on the Avonex until the insurance approves the Ty infusions, and then stop the Avonex, wait a month and start the TY. Because if my insurance denies it for some reason she does not want me to be without some sort of drug. So we will see what happens.
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