Welcome to this site and I am sure you are scared but you will find this sight a great help.

Your symptoms seem to be classic MG. I have been DXed over 18 years and the problem with MG is it is different to everyone at different times. I thought I might have had MS because I have things other than just the "weakness" but all tests still say no, just MG.

Everything you have written screams MG. Has your Dr talked about a thymectomy? Now realise not everyone has a tumor of the thymus. I didn't, but I had a fatty thymus, meaning it was spread out around my other organs and they went in and "scraped" my thymus out.

I went into remission for 17 years. Now that I am out of remission I am back on mestinon {can't take any other meds}

I hope you find answers that you are looking for and know we all understand how you feel.