Kate,
Thanks for the kind words. I am still hopeful that if I can continue to slowly increase my dose I will see alot more improvement. I definitely feel better than I did!!!!
Annie,
You are right, I am getting way ahead of myself. Thanks for pointing that out. I tend to be the type who wants answers now and hate waiting! I'm going to let it go for now.
I had no idea that a thynoma could be hard to see with a CT scan. I learn something new here everytime I visit the forum.
I am doing my best to take it easy when I start tiring out.
Thanks,
Kendra
Quote:
Originally Posted by AnnieB3
Kendra, Don't jump the gun! What is in your lungs could just be inflammation. Wait until the experts tell you what is going on or you could drive yourself nuts. Sometimes it is hard to see a thymoma on a CT. I've known people who have had one with a negative scan. It's good the experts think it's fine though.
I am very glad you are tolerating the Mestinon. It's not a perfect drug though; you still have to take things easy. 
Annie |