Check out this site and really take a look at all auto-immune issues? some are simple such as thyroid and/or cancers - by 'simple' I mean, that there are tests specific to these disorders and they are very treatable now, compared to 10 or 20 years ago!
Take a look at these pages, please?:
http://www.labtestsonline.org/unders.../glance-3.html
http://www.labtestsonline.org/unders.../glance-2.html
What this all means? IS THAT it's not necessarily LUPUS! But, it could be one of a zillion other neuro or rheumatological issues. So, don't panic until all the tests are in and the 'jury has a verdict' so to speak. Diagnosis for ALL of this stuff is done more thru the process of "ELIMINATION" - as most neuro diagnoses seem to be composed of results that point to either a yes or a no [w/sometimes a 'maybe' thrown in?] sort of hunt and peck process.
Try this roadmap of diagnostics as well....:
http://www.aafp.org/afp/980215ap/poncelet.html
Read it ALL carefully. It will help you with the language of diagnosis and of all the likely tests involved.
What makes YOU think it's lupus? Is it juswt because one doc 'thinks' it mite be it? Well, that's what second opinions are for! And, they can be very cheap in the long run for peace of mind. IMHO!
Keep at it and keep getting tested! - j